We are seeking input from the Gravity Community

Question:  Are these good data principles to adopt and use?

Please review the below example of an organization's data principles and share your thoughts with us.  Email Mark Savage and Sarah DeSilvey with your input.  We appreciate your insight!


<a href = "https://confluence.hl7.org/download/attachments/76158722/Draft%20Gravity%20Project%20Data%20Justice%20Principles%20%287-1-2020%29.docx%20%281%29.pdf?api=v2" download="Draft The Principles of Data Exchange for Equitable Health and Social Care (09-03-2020).docx">Click here to download the draft Principles of Data Exchange for Equitable Health and Social Care</a>

Gravity Project Draft Data Principles Overview

Based on recommendations we have received from the Gravity Project community to-date, we have drafted a set of data use principles for electronic health information exchange.  Click here to download the draft Gravity Project Community and Patient Principles for Electronic Health Information Exchange and Data Stewardship document.  The following are the overarching concepts included in this document:

Background

In 2010, leading consumer, health, and civil rights organizations released a set of consumer and patient principles for ensuring that electronic health information exchange and medical records benefit patients and communities, too.  The nine overarching principles cover the following:

  1. Benefits for personal health
  2. Benefits for population health
  3. Ensuring that all patients and consumers benefit equally
  4. Designing the technology and services so that they meet the range of needs without barriers or diminished function for some, such as people who use languages other than English, or people with disabilities
  5. Ensuring the privacy and security of patients' health information
  6. Preventing misuse of patients' data
  7. Building partnership and HIT literacy among patients, providers, and public health officials
  8. Accountability for realizing the benefits of health information exchange
  9. Enforcing these protections for patients and communities