Chair: Virginia Lorenzi

Scribe: Dave deBronkart

NOTE: This attendance applies if you are present at the related meeting/call, regardless if you have signed a different attendance for your WG. 





Virginia Lorenziy
Debi Willisy
LLoyd McKenziey
Rachel Richessony

Mikael Rinnetmäki

Nancy Lush
Lisa Nelson
Dave deBronkarty
Jan Oldenburgy
Marie Moeny
Abigail Watsony
John Moehrke
John Keyesy
Bart Carlson (@AzubaHealth)

Terrie Reed
Liz Murrans

Lindsey Hoggle

Juana Romero

Lisa Winstel

Jose Costa Texeira

Meeting Info:

HL7 Patient Empowerment 
United States: +1 (872) 240-3212,,,322-275-573 

Agenda for April 16, 2020

Our priorities chosen on April 9... who will lead each?  Which do we bootstrap first?

Summary of action items

Agenda Outline

Agenda Item

Meeting Minutes from Discussion


Welcome newcomers /
COVID-19 "open mic"

Any other news?
ManagementApproval of this Agenda
ManagementPrior call Minutes approval


ManagementAction steps for chosen priorities
  • These two have existing projects in HL7:
  • New topics we'll define- no ongoing HL7 projects:
    • Patient Contributed Data
    • Corrections to Errors in the Record


Time to plan action, pick project leaders, get to work!

  • For Care Planning (Patient Care) and Consents (CBCP): identify their existing projects for our chosen priorities
  • For the new topics, start creating HL7 Project Scope Statements  See  How to Create a PSS from Template, which leads to this starter page.

What's next in the HL7 method? Do we pick project leads?

  • Dave deBronkartcontact HL7 newsletter editor to see if we can get these into our article

========== Today: 

  • Pt Contributed Data: Jan  & Maria D. Moen
  • Corrections: Lloyd: Note, our role would not be to define policy and "shoulds" - our role is to define the infrastructure. Once that's done, the EHRs could say "Yeah, that's something we could do." Then the discussion can start about whether / when to do it. 
    • Debi is passionate & would like to be involved but doesn't feel strong enough to lead. Abigail Watsonis "very much involved" and has done some architecture work.
    • Maria points out that a correction protocol exists for clinicians to fix their own mistakes. Lloyd notes that it's very different when you introduce communication across boundaries - needs to be defined. No different from a clinician from System A wanting to fix something in System B
    • Dave notes that outside healthcare, the field of ODR (Online Dispute Resolution) has a robust legal workflow that's implemented globally. I've alerted them that we may be crossing paths. (So far, they don't get it)

Rachel notes that nursing interns may be a good resource for any of these.

  • Consents: John Moehrkevolunteered to give us a presentation on what's going on there.


From Mikael in the chat box re corrections - where should this go?  My responses are in bold italics

Dave, some other notes I think would be valuable to capture:

  • HIPAA requires the capability for patients to request their data be fixed, and organisations reacting to that
    • By "organisations reacting" do you mean they are required to act on those submissions? (There's a common complaint from patients that the orgs often don't, so errors persist)
  • Medication requests have a process for this
    • Is that a group in HL7?
  • Virginia: it’s possible to send corrective data to other parties, but they only accept it on their own discretion. It’s not a collaborative effort to build a consistent set of data.