Standards Harmonization Breakdown for Sex and Gender Terminology
Value Set Source Names and Concept Names are alphabetized.
Value Set NameSources?Value Set ContextSpecific Use Cases (Manisha insert)Workflow ?
Administrative Gender (HL7 V3) PHINVADSAdministrative Gender based upon HL7 V3 vocabulary. This value set contains only male, female and undifferentiated concepts.
Administrative Sex (HL7) PHINVADSHL7 version 2.5 User-Defined Table 0001 Administrative sex code
Current Sex (NND) PHINVADSN/A
Female Gender (NCHS) PHINVADSTo reflect the sex of the deceased as female
Gender Identity PHINVADSPatient identified gender identity (i.e., an individual’s personal sense of being a man, woman, or other gender, regardless of the sex that person was assigned at birth)
Gender Identity (STD) PHINVADSPatient identified gender identity (i.e., an individual’s personal sense of being a man, woman, or other gender, regardless of the sex that person was assigned at birth)
Male Gender (NCHS) PHINVADSTo reflect the sex of the deceased as male
Sex (MFU)PHINVADSConstrained list of sex codes in use by public health. Keyword: Administrative Sex.
Gender (Syndromic Surveillance)PHINVADSN/A
Australia Saludax Gender Identity Standards Australia (Saludax) A Gender Identity data element is provided and is defined as: The behavioural, cultural or psychological traits typically associated with a specific sex, indicating the sex with which the individual considers he or she is, or desires to be, associated. Gender is not the same as sex, which is determined by biology.
Australia Saludex SexStandards Australia (Saludax) A Sex data element is provided and is defined as: Biological distinction between male and female.
Australia METeOR GenderMETeOR (Australia) The way in which a person identifies their masculine or feminine characteristics. A person's gender relates to their deeply held internal and individual sense of gender and is not always exclusively male or female. It may or may not correspond to their sex assigned at birth.
Australia METeOR SexMETeOR (Australia) Sex is the biological distinction between male and female. Where there is an inconsistency between anatomical and chromosomal characteristics, sex is based on anatomical characteristics.
German Cancer RegistryCancer Registry (Germany)The German cancer registry law provides for the following characteristics:
Gender Canadian Institute for Health Information (CIHI) A code used to indicate the gender of the patient
Gender (Intending to capture Sex)Canadian Institute for Health Information (CIHI) The sex of the patient. Gender is one alpha character describing the sex of the patient.
Sex Canadian Institute for Health Information (CIHI) n/a
Sex at Birth Canadian Institute of Health Information (CIHI), Statistics Canada, and Ontario Ministry of Health and Long-Term Care (MOHLTC) A code that identifies the category assigned to an individual at birth that is typically based on their reproductive system and other physical characteristics. (Reference: Statistics Canada)
Gender Canadian Institute of Health Information (CIHI), Statistics Canada, and Ontario Ministry of Health and Long-Term Care (MOHLTC)A code that refers to the socially constructed roles, behaviors, identities and expressions of girls, women, boys, men and gender diverse people by a given society (Reference: Canadian Institutes of Health Research).
Gender Identity Center for Addiction and Mental Health (Canada) How would you identify your gender identtity?
Gender German law /eGKThe German legislation was changed in 2018
HL7 Administrative Gender (provided by Germany) See http://wiki.hl7.de/index.php?title=GeschlechtThe gender of a person used for administrative purposes.
Gender IdentityHL7 Gender IdentityThis example value set defines a set of codes that can be used to indicate a patient's gender identity.
Gender identity ONC (LOINC)Gender identity answers as specified by the Office of the National Coordinator for Health IT (ONC).
Gender of the patientxDT (Provided by Germany)The gender of the patient is transmitted in the xDT standard of the KBV in field 3110:
Gender CodeX12Code indicating the sex of the individual
USHIK HITSPIdentify the sex structure of a person or animal. Excluded are codes related to clinical gender.
Gender Code IAIABC (International Association of Industrial Accident Boards and Commissions)The IAIABC EDI Claims Standards are used by claims administrators to report workers' compensation first report of injury and subsequent report of injury claims data to U.S. jurisdictions.
Employee Gender CodeIAIABC (International Association of Industrial Accident Boards and Commissions)The IAIABC EDI Medical Standards are used by claims administrators to report workers’ compensation medical bill data to U.S. jurisdictions. These standards are based on the October 2003 X12 standards, referred to as Version 5, Release 1, Sub-release 0 (005010) ©2004 Data Interchange Standards Association, Inc. (DISA) in its capacity as Secretariat to X12
GenderNCPDP(Appears to be for sex or gender)
GenderNCPDP
OMOP Athena view
GenderSaskatchewan eHealthGender: Health Registries use Birth Certificates, Passports, Immigration Documents and the New Born Registry as official gender identifiers.
Sex Data StandardUS Office of Minority Health (OMH)The data standard for sex is male and female. Sex data collection applies to survey participants of all ages.
Sex asked since 1790United States Census Bureau 2020A QUESTION ABOUT THE SEX OF EACH PERSON IS USED TO CREATE STATISTICS ABOUT MALES AND FEMALES AND TO PRESENT OTHER DATA BY SEX.
(n) SexUS 2015 Rule1) Standard. Birth sex must be coded in accordance with HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor (incorporated by reference in § 170.299), attributed as follows:
(o) Sexual Orientation and Gender IdentityUS 2015 Rule(1) Standard. Sexual orientation must be coded in accordance with, at a minimum, the version of SNOMED CTsupreg; codes specified in paragraph (a)(4) of this section for paragraphs (o)(1)(i) through (iii) of this section and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor (incorporated by reference in § 170.299), for paragraphs (o)(1)(iv) through (vi) of this section, attributed as follows:
(2) Standard Gender Identity US 2015 RuleGender identity must be coded in accordance with, at a minimum, the version of SNOMED CT® codes specified in paragraph (a)(4) of this section for paragraphs (o)(2)(i) through (v) of this section and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor (incorporated by reference in § 170.299), for paragraphs (o)(2)(vi) and (vii) of this section, attributed as follows:
AdministrativeGenderStandards (HL7 v.3)
The American Clinical Laboratory Association (ACLA)
JAMIA: The PRIDE Study