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Scope

This page collects some initial thoughts about the FHIR4FAIR FHIR IG

To be discussed

  1. Structure of the guide
  2. Extension of the "informative" part 
  3. Proposed development approach
  4. Organization of a FAIR track ?

Structure of the guide


Proposed development approach

The FAIR data object is quite wide concept that could cover in real life very different things from a collection of data (data set) to a single atomic information (e.g. a diagnosis).

Depending of what a FAIR object is, may change the boundary between data and metadata; how the object could be represented in in FHIR and instances could be assessed.

The suggestion to be discussed with the team is the following:

  • identify relevant types of FAIR objects for health data in real life (to be determined how many and which one)
  • the guide is restricted to social and health data, other kinds of health-related artefacts, as clinical guidelines, algorithms, software, models are out of scope. 
  • select one of them as reference case and focus on that kind of object
  • identify a minimal set of information that are relevant in real life for the components of that FAIR object.
  • proceed incrementally starting from few essential information, in order to excursive also the development process (i.e. not to try to cover everything from the beginning)


The following picture shows one proposed conceptual structure of a FAIR data object , (another representation includes the provenance in the metadata and add as a separate component "standards and code")

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