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Project Information

The scope of this project is to provide guidance on how HL7 FHIR can be used for supporting FAIR health data implementation and assessment, specifically:

  • the FAIR (Findability, Accessibility, Interoperability, and Reusability) principles
  • the proposed RDA (Research Data Alliance) - https://www.rd-alliance.org/ - recommendations on FAIR data maturity model, providing indicators for assessing adherence to the FAIR principles.
  • the recommendations of RDA Reproducible Health Services Working Group for describing, documenting, and sharing metadata for health data curation workflows

This will be done by developing a FHIR4FAIR FHIR Implementation Guide aiming to:

1) Identify how HL7 FHIR standard fulfills data FAIRness maturity indicators

a) analyze the relationship between FAIR data object conceptual components (e.g. data, metadata, provenance, identifiers) and HL7 FHIR resources

b) analyze how RDA FAIR Maturity indicators are supported by specific HL7 FHIR resources

c) analyze how RDA Reproducible Health Data Services recommendations can be supported by HL7 FHIR

d) identify a minimum set of metadata to be fulfilled for specific sets of RDA FAIRness maturity indicators extended of health-related research data sets.

e) provide examples of best practices from EOSC (European Open Science Cloud https://www.eosc-portal.eu/) or NIH (https://www.nih.gov/)

2) Suggest an assessment methodology/checklist, exploring machine-readable and manual assessment methods.

This guide should contain a large informative part explaining and a set of FHIR conformance resources and examples that provide, for selected case(s), a practical example of how FAIRness can be realized and assessed by using HL7 FHIR.
This project is intended to be the result of an active collaboration between RDA and HL7, the plan is to consult the Health care communities to comment and endorse the resulting HL7 FHIR IG taking into account relevant RDA group input.

Plan

Project Facilitators

Giorgio Cangioli

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