When adding a new HTA External Code System Information page ensure that a row for the code system is added to the index at the following link: HTA — External Terminologies - Information – Code System Metadata Records Index
Data element name
Sub data element name
Code System Owner
|Name||National Center for Biotechnology Information, U.S. National Library of Medicine|
|Address||8600 Rockville Pike, Bethesda MD, 20894 USA|
|Code System Maintainer (Steward)||Name|
|Code System Publisher||Name|
|Code System Names||Formal name of the code system||Genetic Testing Registry|
|Short name of the code system||GTR|
|Code System Technical Identifiers||HTA-endorsed URI||https://www.ncbi.nlm.nih.gov/gtr|
|Code System Information||Link||https://www.ncbi.nlm.nih.gov/gtr/|
"The Genetic Testing Registry (GTR®) provides a central location for voluntary submission of genetic test information by providers. The scope includes the test's purpose, methodology, validity, evidence of the test's usefulness, and laboratory contacts and credentials. The overarching goal of the GTR is to advance the public health and research into the genetic basis of health and disease"
"Each Test is a specific, orderable test from a particular laboratory, and is assigned a unique GTR accession number. The format is GTR00000001.1, with a leading prefix 'GTR' followed by 8 digits, a period, then 1 or more digits representing the version. When a laboratory updates a registered test, a new version number is assigned."
To find all laboratories in GTR and all registered tests, see here https://www.ncbi.nlm.nih.gov/gtr/all/tests/?term=all%5Bsb%5D
|Arrangement or agreements with HL7 for use of content||None|
|Version management||Submissions are made on an on-going basis. Versions should be stated using a date time stamp representing the date on which the GTR was downloaded or accessed.|
|Code System Copyright, Intellectual Property and Licensing||Copyright Statement|
NCBI's Disclaimer and Copyright notice must be evident to users of your service.
Information that is created by or for the US government on this site is within the public domain. Public domain information on the National Library of Medicine (NLM) Web pages may be freely distributed and copied. However, it is requested that in any subsequent use of this work, NLM be given appropriate acknowledgment.
NOTE: This site contains resources which incorporate material contributed or licensed by individuals, companies, or organizations that may be protected by U.S. and foreign copyright laws. These include, but are not limited to PubMed Central (PMC) (see PMC Copyright Notice), Bookshelf (see Bookshelf Copyright Notice), OMIM (see OMIM Copyright Status), and PubChem. All persons reproducing, redistributing, or making commercial use of this information are expected to adhere to the terms and conditions asserted by the copyright holder. Transmission or reproduction of protected items beyond that allowed by fair use (PDF) as defined in the copyright laws requires the written permission of the copyright owners.
|Copyright Information||General copyright, as stated on NCBI's GTR site, is as included in the Copyright Statement|
|Intellectual Property Information|
|HTA endorsement status (Draft, In review, Endorsed for use, Pending re-endorsement, Retired)||Value||Endorsed for use|
|HTA review status||Last review date||2022-01-27|
|Next review date||2023-01-27|
|Information current as at (date)||2022-01-27|