Page tree
Skip to end of metadata
Go to start of metadata

You are viewing an old version of this page. View the current version.

Compare with Current View Page History

« Previous Version 5 Next »

We are seeking input from the Gravity Community

Question:  Are these good data principles to adopt and use?

Please review the below example of an organization's data principles and share your thoughts with us.  Email Mark Savage and Sarah DeSilvey with your input.  We appreciate your insight!


Click here to download an example data principles document.

Gravity Project Draft Data Principles Overview

Based on recommendations we have received from the Gravity Project community to-date, we have drafted a set of data use principles for electronic health information exchange.  Click here to download the draft Gravity Project Community and Patient Principles for Electronic Health Information Exchange and Data Stewardship document.  The following are the overarching concepts included in this document:

  • Important Benefits for Individual Health
  • Important Benefits for Population Health
  • Inclusivity and Equality
  • Universal Design, Accessibility, and Interoperability
  • Privacy and Security
  • Preventing Misuse of Health Data
  • Partnership and HIT Literacy
  • Accountability
  • Enforcement
  • Openness and Transparency
  • Collection Limitation
  • Purpose Specification and Minimization
  • Data Integrity and Quality
  • Use and Disclosure Limitation
  • Individual Participation and Control
  • Local Control

Background

In 2010, leading consumer, health, and civil rights organizations released a set of consumer and patient principles for ensuring that electronic health information exchange and medical records benefit patients and communities, too.  The nine overarching principles cover the following:

  1. Benefits for personal health
  2. Benefits for population health
  3. Ensuring that all patients and consumers benefit equally
  4. Designing the technology and services so that they meet the range of needs without barriers or diminished function for some, such as people who use languages other than English, or people with disabilities
  5. Ensuring the privacy and security of patients' health information
  6. Preventing misuse of patients' data
  7. Building partnership and HIT literacy among patients, providers, and public health officials
  8. Accountability for realizing the benefits of health information exchange
  9. Enforcing these protections for patients and communities
  • No labels