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In 2010, leading consumer, health, and civil rights organizations released a set of consumer and patient principles for ensuring that electronic health information exchange and medical records benefit patients and communities, too.  The nine overarching principles cover the following:

  1. Benefits for personal health
  2. Benefits for population health
  3. Ensuring that all patients and consumers benefit equally
  4. Designing the technology and services so that they meet the range of needs without barriers or diminished function for some, such as people who use languages other than English, or people with disabilities
  5. Ensuring the privacy and security of patients' health information
  6. Preventing misuse of patients' data
  7. Building partnership and HIT literacy among patients, providers, and public health officials
  8. Accountability for realizing the benefits of health information exchange
  9. Enforcing these protections for patients and communities

We are seeking input from the Gravity Community

Question:  Should the Gravity Project have a broad set of principles on data exchange and use, or just a focused principle or two on data justice and stewardship?

Please review the below example of an organization's data principles and share your thoughts with us.  Email Mark Savage and Sarah DeSilvey with your input.  We appreciate your insight!

Click here to download an example data principles document.

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