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The CARIN Alliance

The CARIN Alliance is a non-partisan, multi-sector alliance co-founded by David Blumenthal, David Brailer, Aneesh Chopra, and Mike Leavitt. The Alliance is led by distinguished risk-bearing providers, payers, consumers, pharmaceutical companies, consumer platform companies, health IT companies, and consumer-advocates who are working collaboratively with other stakeholders in government to overcome barriers in advancing consumer-directed exchange across the U.S.

Our Vision

Our vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals. Specifically, we are promoting the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces or APIs. We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or plan in the country.

What is Consumer-Directed Exchange?

Consumer-directed exchange occurs when a consumer or an authorized caregiver invokes their HIPAA Individual Right of Access (45 CFR § 164.524) and requests their digital health information from a HIPAA covered entity (CE) via an application or other third-party data steward.


Health Plan Workgroup 

Objective: Develop a consumer payer data set (similar to Blue Button 2.0) and corresponding implementation guide for the set of resources that payers can display to consumers via a FHIR API

Charter: CARIN Blue Button and Health plan workgroup charter

Work in Development: CARIN Blue Button Implementation Guide (this is still in process and should not be viewed as final) and the PSS for CARIN Blue Button 

Consumer-facing Real-time Pharmacy Benefit Check Workgroup: 

Objective: Develop a consumer-facing FHIR implementation guide that maps the NCPDP real-time pharmacy benefit check EDI transaction standard to FHIR and includes cash price from the GoodRx API.

Charter: Consumer-facing real-time benefit check workgroup charter

Work in Development: PSS for CARIN Consumer-facing Real-time Pharmacy Benefit Check

To learn more about CARIN, or explore opportunities to participate in our activities, please contact us or visit our website.

Board Members and Participants

Key Contacts

Ryan Howells, Principal at Leavitt Partners

  • Program Manager

Dave Lee, Director at Leavitt Partners

  • Policy, Trust Framework, and Real-time Pharmacy Benefit Check workgroups

Mark Roberts, Associate at Leavitt Partners

  • Contracting, Membership, Mailing Lists, Meeting Invites, Quarterly Meetings, Health Plan workgroup

Lauren Ward, Associate at Leavitt Partners

  • Policy and Digital Identity workgroups

Pooja Babbrah, Senior Consultant at Point of Care Partners

Amol Vyas, Technical Architect at Cambia Health Solutions

  • No labels