Meeting Details

Date: March 17, 2023

Time: 1PM ET

Coordinates:  Join Zoom meeting: https://zoom.us/j/5100467805 | Meeting ID: 510 046 7805 | +1 929-436-2866-US (New York)

Attendees: 

Ralf Herzog (Roche), Rob Hausam (Hausam Consulting), Pam Banning (3M), Kathy, Dan Rutz (Epic), Christopher Harrison (Quest Diagnostics), Craig Newman (Altarum), Marti Velezis (Sonrisa / FDA), Sheryl Taylor (NIST), Hans Buitendijk (Oracle), Joan Kegerize (ACLA)

Co-chair: Hans Buitendijk

Scribe: Riki Merrick

• Quorum (Co-Chair + 4) Met 

AGENDA

• Standing Topics 
  • Special Topics
  • Workflow updates
• JIRAs Triage
• Other?

Meeting Resources

JIRA Dashboards:

• OO FHIR Lab Dashboard
• v2 Dashboard

eSignature Update

• Not discussed

eSignature Update

2023-02-24 OO - LAB/LIVD has PAC feedback discussion

Any Update?

New Rule on Race/Ethnicity from OMB

Due date is April 12, 2023  

• They now want to conflate 4 different things into 1 field: race / ethnicity/ nationality / lineage = descendants of slaves or Asian immigrants before a specific time
  • Not good to conflate – currently those are different fields in the standard
  • They asked questions of which solution would work best – need to better understand the options they are presenting in the questions to decide
  • Kathy will create the first draft - for review next week

New Rule on Race/Ethnicity from OMB 

Background:

• Federal Register :: Initial Proposals For Updating OMB's Race and Ethnicity Statistical Standards  https://www.federalregister.gov/documents/2023/01/27/2023-01635/initial-proposals-for-updating-ombs-race-and-ethnicity-statistical-standards  
• <from prior call chat> Hans mentioned “trickle down” - the reason we had race and ethnicity terms added in HL7 started with V2 is because CDC requested Patient Administration (Chpt. 3) to add (HL7 V2.4 I think) because CDC had to conform to federal requirements.  The same terms used for Census Bureau data ‘trickled over’ to other federal agencies.  If this new request for comment proceeds to a new proposed then final rule, it would probably “trickle down” eventually impacting CDC, ONC, CDC (thus eventually healthcare standards) etc.  See 1997 link and you will recognize correlation to HL7 V2 of race and ethnicity.  Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity | The White House (archives.gov) https://obamawhitehouse.archives.gov/omb/fedreg_1997standards

New Rule on Race/Ethnicity from CDC

Due date is April 1, 2023 

• OMB 5 categories – there will be changes there, too
• Detailed list is being expanded and some codes are being retired – these codes still roll up into the 5 OMB categories
• Ultimately OMB categories will have to be updated, once those rules are out
• Because they are proposing a number of concepts be retired – what are we doing with those?
• Depends on the use of this data what concepts are appropriate
• Looks like they are using NEW codes for ALL concepts, even the ones they are not replacing?
  • They are building on what was used for the census in 2020
  • This seems to be more of a "make other groups within HL7 aware of this" so they should make these comments like PA, PH, Terminology Infrastructure and cc PAC - Ulrike Merrick to draft and send to the list first
• For those in clinical interpretations this list is not complete (ethnicity for example around jewish faith) – that is OO comment
  • Changes for the longer race list https://hl7.org/fhir/R4/valueset-referencerange-appliesto.html will affect this value set for reference range characteristicss
• For cancer do want to know, if folks are multi-racial – but should not have that as special category
  • US core is only 0..1 – that needs to be fixed
• None of these concepts have definitions
• In ethnicity – also some terms include male/female versions others don’t – should not be mixed in here either
• CDC Race / ethnicity National Webinar scheduled for Tuesday 3/21 1-2 PM ET: Please click the link below to join the webinar: https://cdc.zoomgov.com/j/1615394362?pwd=ZlNSNGRnbjUrZ0lmWW1uUzMwL0hlZz09 Passcode: 595705@1a

PHIN VADS Hot Topics at https://phinvads.cdc.gov/vads/SearchVocab.action first mentions commenting and second gives links to documents. 

NEW 4/1/2023

Comments on the CDC Race and Ethnicity Code System (CDCREC) will be accepted until April 1, 2023. Artifacts can be found by viewing the 2022_RaceAndEthnicityFinal_TablesforPub_Final. In addition, the rationale for the prepared code system is located in the Background file. For technical assistance and support concerning the updated CDCREC, please email RECODES@CDC.GOV or PHINVS@CDC.GOV mailboxes.

CDC Race Category and Ethnicity Group

List of concepts present in CDC Race Category value set which is based upon OMB recommendations and list of concepts present in Ethnicity Group value set which is based upon OMB Race & Ethnicity.

FILE: 2022_RaceAndEthnicityFinal_TablesforPub_Final.xlsx - Race and Ethnicity Download File (Full Code System, relationships, and Hierarchy codes)

FILE: 2022 Race and Ethnicity Code System_Background_Final.pdf - Background and Purpose

LINK: Background and Hierarchy