- Created by Rick Geimer, last modified by Arvind Jagannathan on Sep 12, 2022
Longitudinal Maternal & Infant Health Information for Research
According to the 2021 Aspen Health Strategy Group report on “Reversing the U.S. Maternal Mortality Crisis”, 700 women die each year as the result of pregnancy or delivery complications, and 50,000 more face short-term or long-term health consequences because of pregnancy or labor. The U.S. has the highest maternal mortality rate of any high-income nation in the world (17.4 maternal deaths per 100,000 live births) according to The Commonwealth Fund. While rates of maternal mortality have been decreasing in other countries, they have been rising in the United States since 1987. Data are not standardized and data exchange in not interoperable across many settings, which impedes research on maternal morbidity, longitudinal maternal care, and associated impacts to infant and infant health.
|Test an Implementation Guide|
Track Lead Email(s)
Call for participants
Kids First Data Resource Center
|Track Kick off Call|
Thursday, 9/8 from 10-11am ET
Watch the Kick Off Call Recording Here
|Clinical Input Required?|
Scenario 1: Evaluate FHIR Data Against Hypertensive Disorders of Pregnancy and Pregnancy Related Deaths measures
Precondition: Data Source has FHIR data necessary to evaluate the Hypertensive Disorders of Pregnancy and Pregnancy Related Deaths measures.
Precondition: Data Source has C-CDA data necessary to evaluate the Hypertensive Disorders of Pregnancy and Pregnancy Related Deaths measures.
HAPI (v5.4.1) https://connectathon-fhir.lantanagroup.com/fhir
Security and Privacy Considerations:
Identify any expectations around security (e.g. will TLS, mutual-TLS, OAuth, etc. be required to participate.