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View the recording online.  Highlights:

  • Pt Contributed Data discussion starts around 4:40.
    • Important distinctions in minutes below, particularly a Zulip thread about "patient writeback" to EHRs, and that the scope of our work (like all of FHIR) is far broader than just EHRs
  • Dave Hill's rich, broad PACIO presentation starts at 21:52. (If a virtual meeting could have a standing O, this would have gotten one)


3PM Monday calls.  See our project calendar for details. NO Patient Corrections

Agenda Outline

Agenda Item

Meeting Minutes from Discussion



~5 minutes

Welcome any newcomers 


Welcome Dave Hill from PACIO - looking at advanced directives

OrganizationAdmin (5 min)Approval of this Agendadone

Prior call Minutes (8/2027/20) approvalOur projects:Debi created a folder structure for projects:  ProjectsPatient Correctionsdone

PACIO discussion

25 min

Dave Hill to join us for a discussion on PACIO and their need for Advance Directives project, which is in scope for our Patient Contributed Data project

Our projects:

0 min

Patient Corrections (Debi & Virginia) - calls 3pm ET Mondays

No update today - both traveling

NO meeting next Monday due to Labor Day holiday. 

15 min

Pt Contributed Data (Jan & Maria)

1Pm Monday call.  See our project calendar for details.

- calls 1pm ET Mondays

NO meeting next Monday due to Labor Day holiday. 

IMPORTANT ZULIP THREAD Clarifications from ONC regarding FHIR certifications including discussion of patient submitted data. 


Jan: is there anything in ONC regs or USCDI related to patient contributions being WRITTEN to the record?

John Moehrke: not that I know of. OTOH, Care Plan certainly involves patient wishes, so it may be a good place to start. 

Debi: Virginia reported some meeting where people were saying they assumed some sort of patient input TO the record. 

Nancy & John exchange: There are places in the world where patients do send info into the organization. But we need to be careful about wording - the EHR is not the only place where patient information exists. 

John: The VA's My Health eVet has a procedure to bundle up patient info and submit it.

NOTE THAT HL7 and FHIR ARE IN NO WAY LIMITED TO EHRs. Apps, payers, etc etc. 

Maria notes that EMR/EHR vendors aren't likely to adopt something without a business case.  We should create a standard that's worth adopting, but we shouldn't be confined to whether EMRs will do it. 

Also, John notes: "EHR" is not synonymous with "provider organization," not to mention the world of apps. The larger care org includes radiology, pathology, and other things.


Action item: Jan will populate the Patient Contributed Data Project folder with minutes and google doc.

Continued to review the Google Doc where the project's thoughts are being collected.  

Discussed scope of the document:

chose to include data coming from an implanted device as patient contributed data (patients often do not have access to this data). 

  • chose to leave out patient contributed administrative data such as change of address or schedule request. 
  • A key purpose of whitepaper is to help us define further projects/priorities.  Also to inform on patient's perspective.  Nancy recommended to look at Kantara - Eve Mailer's piece.

    ACTION: Review this document and comment by next meeting.

    Update on Project Logistics/HL7 process

    OUR ACTION:  We need to review the old / deprecated "Documents" folder on our project's home page, so that we can move things to the new "S3 File Connector" instead. (Dave posted a Zulip question 8/25 asking for help in understanding this.)

    September meetings: Connectathon

    Discuss connectathon participation.  Sept

    See Melva

    Connectathon is next week, Tues-Thurs

    10 min

    Sept 9-11 virtual FHIR Connectathon: registration and info here 

    Our participation in Sept 9-11 Connectathon:

    • PACIO/ELTSS: Nancy (Patient-Centric Solutions)
    • Care Coordination: PatientLink, MaxMD, 
    • Gravity: MaxMD

    (Note: there's another Connectathon coming in January.)

    WG meeting

    Review/update draft WGM agenda

    Register for meeting here:  Early bird rate ends September 7th.

    Dave Hill to join us for a discussion on PACIO and their need for Advance Directives project



    If this is going to happen, we need to move it to the top of the agenda.


    Write a comment…


    This is to approve minutes via general consent. "You have received the minutes. Are there any corrections to the minutes? (pause) Hearing none, if there are no objections, the minutes are approved as printed."