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Chair:  Virginia Lorenzi

Scribe: Dave deBronkart

Chair:  Virginia Lorenzi

Scribe: Dave deBronkart





Virginia Lorenzi

Debi Willis

LLoyd McKenzie

Rachel Richesson

Mikael Rinnetmäki


Nancy Lush

Lisa Nelson
Dave deBronkart

Jan Oldenburg

Marie Moen

Abigail Watson
at :45

John Moehrke

John Keyes

Terrie Reed
Jose Costa Teixeira
Bart Carlson

Casey Thompson
nurse informaticisty

Meeting Info:

HL7 Patient Empowerment 
United States: +1 (872) 240-3212,,,322-275-573 

Agenda Outline

Agenda Item

Meeting Minutes from Discussion

Agenda Outline

Agenda Item

Meeting Minutes from Discussion

(15 min)

Welcome newcomers

Casey Thompson
Reminder to newcomers: subscribe to Patient Empowerment Listserver and create account on confluence:

Approval of this Agenda
yes as modified during meeting

Prior call Minutes approval

co-chair nominations and elections

Send nominations to: by June 15.   While you can just submit your name, often people submit a short bio as you can see here: 

We need at least one more person other than Debi/Dave/Virginia to run. 

However, if anyone is interested please nominate yourself.  Voting will occur in the summer.  

Has anyone else been nominated? 

HL7 point of policy:

  • list servers (and most likely chat) cannot be used for "campaigning". 
  • You will need to be subscribed to the list server and be a member of HL7 to vote and must be a member to run for a co-chair position.
Other updates?

Devdays and other NewsAnyone attending devdays?  Patient Innovator Track, rumor of upcoming Patient Access API Connectathon

PE WG projects 

(30 min)

Patient Contributed Data

Discussed draft proposal. Maria moved to approve Jan's draft, Nancy seconded. Unanimous except 1 abstain. — by the of meeting Jan already submitted it to HL7: 

Image ModifiedPSS-1655 - Create a white paper on patient contributed data IN REVIEW 

Future call

One comment received:

Lisa to present Care Planning WG's work


k.connorImage AddedKathleen Connor added a comment - 6 days ago

Please loop in the CBCP and Security WGs on this projects as there are both policy and technical privacy/security issues that this topic touches on.  I anticipate that both WGs will be happy to assist the project with input on both.

Care Plan Next StepsTracking care plan - next steps?: Care Plan Weekly Meeting Plan and  

Consents Next Steps
Other WGs' project proposals that we might follow

Others' project proposals: examples:i - Vital Signs Project,

Recent Consent Project, and 

   "Account, Payments, and Statements"


Accounts, Payments and Statements Project Scope Statement

See heading 2a, "Primary/Sponsor WG"

Note, that one's a project SCOPE statement, not the brief Project Proposal

(Billing statement to patients, payments from patients)

Which should we be following?  How do we spot them and what do we do about them?   How do you-all do this in other groups?

HL7 Project Proposals page link:

The project proposals space in confluence:

And in Jira:


Project ProposalImage RemovedPSS-1655Create a white paper on patient contributed dataJan OldenburgJan OldenburgMediumImage RemovedIN REVIEWUnresolvedJun 04, 2020Jun 08, 2020Jun 18, 2020Project ProposalImage RemovedPSS-1652Gemini SDPi+FHIR White PapersTodd CooperTodd CooperMediumImage RemovedIN REVIEWUnresolvedMay 22, 2020Jun 09, 2020Jun 05, 2020Project ProposalImage RemovedPSS-1643FHIR IG for Device Information Client ApplicationsUnassignedTodd CooperMediumImage RemovedACCEPTEDDoneMay 06, 2020Jun 02, 2020May 20, 2020Project ProposalImage RemovedPSS-1599Patient Corrections to errors in the recordUnassignedJohn MoehrkeMediumImage RemovedACCEPTEDDone
Apr 23, 2020May 26, 2020
PSS-1545SDC+FHIR Device InteroperabilityTodd CooperTodd CooperMediumImage RemovedACCEPTEDDoneMar 17, 2020May 26, 2020Project ProposalImage RemovedPSS-1544Need a standard for patient identificationUnassignedHoward EdidinMediumImage RemovedREJECTEDWon't DoMar 14, 2020Jun 03, 2020Project ProposalImage RemovedPSS-1543HL7 BrazilUnassignedJira AdminMediumImage RemovedDRAFTUnresolvedMar 05, 2020Mar 05, 2020Project ProposalImage RemovedPSS-1542Nutrition Care Process on FHIRUnassignedBecky GradlMediumImage RemovedACCEPTEDDoneMar 02, 2020May 26, 20208 issues  Refresh


Being a co-sponsor of a project is a much bigger obligation than being an "interested party." The latter only gets occasional notification of news.


This subject is tabled for now. All of HL7 needs our voice but there's a big question of who in our modest group is going to take on responsibility for doing whatever we'd be agreeing to do.

ConsentsJohn Moehrke presented for 20 minutes on the work in CBCP.  Link to the GoToMeeting recording.  John's part is the last 25 minutes:

Adjournment2:05 pm