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Date: 29 May 2020
|Wendy Ver Hoef|
|Lilian Siu||Princess Margaret Cancer Centre|
|Marie Suga||Kaiser Permanente|
|Monica Bertagnolli||Alliance for Clinical Trials in Oncology|
|Dinesh Kotak||Kaiser Permanente|
|Kerry Rowe||Intermountain Health|
|Courtney Davis||Jim Hayman|
|Shauna Hillman||Alliance SDMC /Mayo|
|Keri Reardon?||Alliance for Clinical Trials in Oncology|
|Michael Aswell||Foundation Medicine|
|Nadia Znassi||Princess Margaret Cancer Center|
|12:05||CodeX Update/Steve Bratt||Use case status overview (see slides)|
|12:10||Registry Reporting/Greg Shemancik|
Work started with CIBMTR - private, not for profit registry, focused on non-solid cancers, CAR-T.
Addressing high burden data collection for reporting.
Starting with mCODE subset, Cancer Disease Status and Treatment Plan Change.
CIBMTR Reporting SMART(R) on FHIR application in the Epic App Orchard.
Leveraging existing work
Monica Bertagnolli (ASCO) Cancer Link Board meeting: one of the essential uses of Cancer Link is to enable members reporting. ASCO and Cancer Link are very interested in participating.
Bob Miller: (Cancer Link) - seconds Monica's comments.
MedMorph/Wendy Blumenthal and Maria Michaels (CDC)
Making EHR Data More Available for Research and Public Health
Funded by PCORTF (Patient-Centered Outcomes Research Trust Fund (via HHS))
More detail in slide deck than covered in session.
Unifying OHDSI, OMOP, i2b2, ACT, PCORnet
Leveraging FHIR, automating as much as possible, limit the proliferation of implementation guides (IG), accounting for implementation variability
Work groups organized around
Wendy (cancer use case)
All cancers are reportable (longitudinal)
Multiple public registries - CDC, National Program of Cancer Registries (NPCR), SEER
Pathology reports are becoming an important data source.
Standard use (CDA, FHIR) not wide spread or consistent.
Limited uptake/implementation by providers and EHRs.
Workflow triggers and information dissemination are key issues targeted by MedMorph
Focusing on transmission of information not easily available now.
Will base data elements on NAACR data dictionary.
Susan Stiles (Cerner): Are we hoping that with some of the reporting to CDC, do you see that going through Cancer Registry software, or getting most of the data from the EHR?
Answer: CDC only gets aggregated data from the states. State registries get detailed patient data which they send on to CDC.
Bob Miller: is the expectation that a FHIR IG will be created, is the expectation that FHIR will be used to transmit information to transmit from the EHR to state registries?
Discussion: EHR to hospital registry first, or EHR to state registry? Would standard registry software currently in use be bypassed?
Answer: no - hospital registry reporting and activities will remain. This will be helpful where there is no hospital registry, or with free-standing practices. This IG might be useful for the EHR to report to the hospital registry, and to the state. Open questions.
Maria Michaels: trusted third party is part of the architecture (which could be an intermediary between the EHR and the state registry)
Joe Rogers: states will have different reporting requirements. CoC facilities require that a hospital registry be in place.
Wendy B: in theory, if the hospital registry vendors are interested in building this interface (per the IG) with their EHR, it could improve hospital registry collection
Susan Stiles: they are talking with the hospital registry vendors - exploring whether they are considering transforming to FHIR
Wendy B: interested in connecting
|Next meeting||June 26 at noon EDT|