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TimeItemWhoNotes
3:30pmUpdate for Gender Codes requested by Public Health

Rob McClure
  • Craig: Folks contacted us saying provider orgs are upgrading their EHRs and will be able to collect non-binary gender. 5 known including Colorado. Not sure what the IIS want to collect. We do not have a code for PID-8. Looking for guidance on how we handle this e.g. perhaps a new harmonisation proposal? Is Table 1 the right place for non-binary? Complexity with different kinds of gender and sex codes. Different product families deal with things differently e.g. tables, value sets, etc. In short, need guidance on how to handle non-binary in V2. Bound to table V2-0001.
  • RobM: There is a technical issue. There is a need to represent information that people need e.g. the code 'X' in drivers licence in Colorado.
  • Craig: Received input from EHR vendors, but not at the point that PID-8 is the right place for a values like non-binary. Different EHR providers are collecting subtly different things. If we expand that values in Table 0001
  • RobM: Intent in agreeing to chair session, that we launch a process (that will not conclude in this quarter). However, can solve the immediate problem that does not conflict with the broader process. Hopefully this will be easier than negation.
  • Cooper: Legal Sex means different things in different US States.
  • Sarah: CDA has administrative gender, and birth sex template (with two values - Male and Female). I am interested because national healthcare services who wish to add gender identity.
  • Reuben: Australian national standard AS 4846-2014 includes Gender Identity as a field with values: Male, Female Intersex, Indeterminate, Other, Person prefers not to say, Unknown/Inadequately Described
  • Sarah: Happy to add a template for gender identity in CDA, but I need a value set.
  • Steve: Its been reported that insurers are not paying due to labs sex/gender not aligning with what the patient told the doctor.
  • Craig: This information is sometimes held in OBX segments. LOINC codes exist for these.
  • RobM: Perhaps the best option is to add 'X' to table V2-0001
  • Craig: Another option is to introduce a new table with Gender Identity values
  • Ted: Difficult to add the code to table V2-0001 as a backwards errata. However, you can make changes to the current table.
  • MOTION by Craig Newman:
    • The advice of the vocabulary group is as follows:
      • O is the best option to represent non-binary in the existing value set
      • A harmonization proposal will be created to added X for non-binary (potentially including a clarification of other terms in the table) in the most current version of Table HL70001
        • Do we include transgender codes?
      • The vocabulary group will continue to pursue a more comprehensive solution to the problem of documenting and exchanging gender concepts across product families
  • Motion passes: 17-0-3

4:45pm

Legacy code system update policy and review

  • Carol provided an overview of the policy: Policy on use of Retired or Legacy HL7 Code Systems
  • Carol notes that as we started this discussion Vocab and HTA recognise much work is required to implement and enforce. HTA will go to TSC and ask how to implement and obtain guidance to enforce the policies.
4:55pmVote on MnM Abstract Datatypes PSS



Action items

  •  Craig Newman Write the harmonisation proposal.
  •  Andrea MacLean Will come back to the group with use cases and related information.