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Chair today:  Virginia LorenziAbigail Watson  

Scribe today: Virginia Lorenzi 

Attendance has been moved to the bottom.  


Agenda Item


Opening & Admin

5 min

Welcome any newcomers 

  • Thank you for joining us!

  • Visit our NEWCOMERS page: Welcome Newcomers! It explains how to sign up to Confluence, our listserv, and the Zulip FHIR chat platform, and how our group works. 

  • We ask attendees to use their full names and include their company name (or N/A or advocate).  This will help avoid zoom bombers and help us with attendance and balanced voting.
Standing announce-mentsAntitrust Reminder

Professional Associations that bring together competing entities, such as HL7, are subject to strict scrutiny under applicable antitrust laws. HL7 recognizes that the antitrust laws were enacted to promote fairness in competition and, as such, supports laws against monopoly and restraints of trade and their enforcement. Each individual participating in HL7 activities, regardless of venue, is responsible for knowing the contents of and adhering to the HL7 Antitrust policy as stated in §05.01 of the Governance and Operations Manual (GOM). 

Ensure Zoom is recording

Note our WG's recording policy:

Patient Empowerment WG’s policy is to record many of its weekly calls and virtual working group sessions to help with minute taking.  If a recording will also be published, the participants will be asked in advance if that is OK.  

Zoom announces when recording is started.  Any participant can also ask the group or the co-chairs that we stop or pause recording in a specific meeting, and recording will be stopped or paused as requested.

Approval of Minutes

3/9 and 3/16 minutes to be approved

(Our protocol: "The minutes have been posted on Confluence. Are there any corrections to the minutes? (pause) Hearing none, if there are no objections, the minutes are approved," )

5 minUpcoming Events

USCDI V4 Comments period is open.

HIMSS - HIMSS Global Health Conference & Exhibition | HIMSS

May WGM and Connectathon

WEDI Patient Experience Virtual Event, April 2023

About Us - Workgroup for Electronic Data Interchange (WEDI)

5 minMission and Charter Updates

Last week, we approved a new mission and charter.  However, the relationships with other groups part is not yet done.  Here is a proposal to consider (review and vote):

Relationships with Other Groups

Relationships with other HL7 Working Groups

Patient Empowerment strives to work with many other work groups within HL7 to amplify the patient voice.  No formal relationships exist at this time.  However, the group has or is currently collaborating with:

  • Patient Care
  • Orders and Observations
  • Community Based Care and Privacy
  • EHR WG
  • Human Services
  • Vocabulary
  • Fast Health Interoperability Resources FHIR
  • Mobile Health

External relationships

Patient Empowerment does not have formal relationships with any external group but is interested in collaboration to ensure that the patient perspective is considered in all standards work.  The group is actively collaborating with PACIO and interested in the work being done in other groups to support workflows with the patient empowerment perspective such as Argonaut, CARIN Alliance, Vulcan, and Gravity, for example. 

5 minSPHR Scope Statement

  Review and vote

5 minProject Updates


Patient Request for Corrections

Patient Contributed Data 


0 min - not on todays agendaCo-sponsored projects

International Patient Access (Wednesday 10AM ET) 

Problem Oriented Health Record (Monday 3pm ET) 

Personal Functioning and Engagement

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Attendance ( )

From Zoom's attendance data:

Name (Original Name)Present
Virginia Lorenzi (NYP)
Abigail Watson  (MITRE)
Dave deBronkart
Debi Willis (myPatientLinks)
Maria Moen (MyDirectives/ADVault, Inc.)
Britt Massei
Corey Spears 
Danielle Sill
Jan Oldenburg  
Jay Gauthier
Jessica Skopac (Mitre)
John Keyes
Lincoln Weed
Michael Mittelman
Natasha Kreisle
Rachel Richesson
Rita Torkzadeh (Aegis)
Ryan Harrison
Tina Wilkins (MITRE)
Lynda Hoeksema (MITRE)
Andrea Downing
Grace Cordovano
Matt Elrod (maxMD)
Dave Hill (Mitre)
Tamara Brantley
Stanley Nachimson
Tammy Hamrick
Kim Herman (Epic)
Nancy Lush

Bart Carlson
Mikael Rinnetmaki
Juhan Sonin
Karen Georges-Ransom (NYP) 
Patricia Falto (NYP)
Vicki Giatzikis (NYP)
Jeff Danford (Optum)
Marjorie Behm (LEAP for health)

Christopher Wean (Epic)

Shaumik Ashraf (Mitre)
Neelima Karipineni (MITRE)

Jason Kulatunga 
Joe Quinn (Smile Digital Health)
Brian Meshell (MITRE)
Lloyd McKenzie