Meeting Information

Meeting ID: 912 9786 9819

Passcode: 594748

Chair:  Carol/Reuben

Scribe: Carol

Antitrust Statement:

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Attendee type:

H - HTA Member

O - observer

L - liaison


P - present

A - Apologies

X- Proxy



Julie JamesBlue Wave Informatics LLP

Roel Barelds

Precipius b.v.

HPSylvia ThunHL7 Germany
HPCarol MacumberClinical Architecture
HPReuben DanielsSaludax
Davera GabrielJohns Hopkins University Institute for Clinical and Translational Research

Wayne Kubick


Suzy RoySNOMED International
Andrea MacLeanCanada Health Infoway
Jessica BotaUTG/Apelon
Ted KleinKlein Consulting / HL7 UTG / Vocabulary WG CoChair
Rob HausamVocabulary WG CoChair
Mareike PrzysuchaHL7 Germany
Rob McClureUS Realm Liaison
Rory DavidsonSNOMED International
Diana WrightLantana Consulting Group
Joel SchneiderNMDP/CIBMTR
Joanie HarperCanada Health Infoway

Minutes of previous teleconference (2021-12-16) 

Agenda Topics

Agenda Outline

Agenda Item


Meeting Minutes from Discussion



TC Minutes Approval


Quorum was met

Motion to approve Minutes:

RD moves, RB seconds: Motion Passes 3-0-0 


UTG/THO Update

ContinuousJess and Reuben

Non-HTA managed code systems retired in continuous build of THO:

THO changes have been implemented and is a first big step to using THO as the single source of truth.

Next step is to clean up the records and align with new template from HTA confluence pages. 

TSMG has referred a question to TSC around the OID request process, awaiting Rob M's return to act as liaison to TSC.

TopicNew PSS ReviewContinuousCarol


External SDO and Code System Issues

(review JIRA tickets

ContinuousCarol/ Reuben

UTG/THO tickets (will be added to THO once approved):

UP-269 - Getting issue details... STATUS

UP-268 - Getting issue details... STATUS

UP-267 - Getting issue details... STATUS

UP-253 - Getting issue details... STATUS

JIRA Dashboard in progress


  • Page approved: AJCC TNM Staging System (TNM)
  • Discuss best way to represent this system in THO
    • The coded concepts are not context free (e.g. code "T2" has different definitions depending upon which cancer you are talking about)
    • Ted Klein has history discussing this system and believes strongly it is not a code system
  • HTA agreed that AJCC TNM has been show to be in production use in many countries and standards (See here for a list within the US ISA, which includes both HL7 and IHE standards).
  • HTA recommends that Vocab collaborate with implementers (and ideally AJCC) to create a "Using AJCC TNM on FHIR" page for inclusion in THO (as the existing pages are planned to be moved there from FHIR)
  • The HTA still contends that there is a separate cancer staging system created by UICC TNM that may also require representation in HL7 products



  • HTA-65 - Getting issue details... STATUS
  • Assigned to: Carol Macumber


  • HTA-37 - Getting issue details... STATUS
  • Approved by HTA

ClinVar Variation ID

  • HTA-42 - Getting issue details... STATUS
  • Assigned to: Carol Macumber

NCBI Genetic Testing Registry

  • HTA-43 - Getting issue details... STATUS
  • Assigned to: Carol Macumber


  • HTA-64 - Getting issue details... STATUS
  • Page (old format) exists without identifiers here ORPHANET





    • ST raised that the ICD-10-GM page has disappeared from the HTA's External Terminologies Information Pages. Reuben Daniels will investigate.
    • No update


Updated CS Identifier process guidance

Continued from previousCarol

We are almost through the core principles. Having issues scheduling a call before holiday break. Will look into January for next call.

The draft is located here: Validating and Requesting Identifiers for External Code Systems and Identifier Systems

HTA members and observers are asked to review the drafted text, directly edit where changes are needed and use the comment functionality to ask additional questions. We will review again (and hopefully approve on the next HTA call, which will be at the WGM).

TopicContinued from previousReuben
  • The OID 2.16.840.1.113883.6.42 is stated in
  • The OID 2.16.840.1.113883.6.2 is stated in
    • THO/UTG's ICD-9-CM Code System Metadata Record as the OID for ICD-9-CM
    • the HL7 OID Registry as a retired OID for ICD-9CM with the following note: Note that this has been retired in favor of an explicit split between the diagnosis codes and the procedures codes as per the Vocablary TC decision on Wednesday Q4, January 21, 2004.  Replaced by 2.16.840.1.113883.6.103 and 2.16.840.1.113883.6.104 as voted by committee.  -T. Klein
  • The OID 2.16.840.1.113883.6.103 is stated in
  • The OID 2.16.840.1.113883.6.104 is stated in
    • the HL7 OID Registry as the OID for ICD-9CM (procedure codes)
  • Requirement:
    • What are the correct OIDs for
      • ICD-9; and
      • ICD-9-CM 
  • Rob McClure to provide an update after checking in with the US Realm group.  No Update

Any Other Business

AdjournmentMeeting adjournedN/ARD

Call adjourned at 

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