National Cancer Institute - Thesaurus

Julie James Hi Julie. The canonical url for this code system on THO is http://ncithesaurus-stage.nci.nih.gov.  Should I enter a UTG ticket to update THO to the value on this page.  

I realize Julie created this page, however do any other HTA members have information about this code system that could help resolve the issue? Caroline Macumber Reuben Daniels Davera Gabriel Susan Matney Sylvia Thun Roel Barelds

Hi Carmela,
Sorry for the late reaction.
i'll bring it in in the HTA. If we have any questions regarding the canonical url we'll get back to you.
Greetings
Roel Barelds

Hello Carmela A. Couderc

Thank-you for reaching out.  Last Friday I met with Gilberto Fragoso of the NCI to discuss our request.  In August 2020, Rob McClurewas good enough to meet with Mr Fragoso and others in his group at the NCI to explain the request for a different url in the HTA records.  The following is an eMail follow-up to that meeting

****************

From: Davera Gabriel
Sent: Monday, August 24, 2020 3:16 PM
To: 'De Coronado, Sherri (NIH/NCI) [E]' <decorons@mail.nih.gov>; Remennik, Lyubov (NIH/NCI) [E] <lyubov.remennik@nih.gov>; 'Fragoso, Gilberto (NIH/NCI) [E]' <fragosog@mail.nih.gov>; 'Robert McClure MD' <rmcclure@mdpartners.com>
Cc: Christopher Chute <chute@jhu.edu>; 'Melissa Haendel' <melissa@tislab.org>; Harold Solbrig <solbrig@jhu.edu>; Dazhi Jiao <djiao@jhu.edu>; jhu-informatics-team@googlegroups.com
Subject: RE: NCIt and NCIm content references in HL7

Hello Sherri, Gilberto and Lyubov:

Thank-you for a very productive meeting today! And thank-you again, Rob McClure for efficiently framing our discussion. As promised, the attached is a pdf version of the current NCIm page hosted by the HL7 Terminology Authority (HTA) for your review.  The following are items for additional follow-up based on our discussion today:

• NCI team will update NCIt and NCIm records in the HL7 OID registry
  1. Changing system “owner” to Gilberto reflecting Sherri’s pending departure
• NCI team will review the attached document and create a version reflecting the NCIt, including
  1. Changing the reference (canonical) url to a page with no extension
  2. Addition of the copyright verbiage (short-version) in the table
• Let Davera know ( or reply to this eMail) when items 1&2 above are completed, so Davera can update the HTA records

In addition, and the longer-term it would be worthwhile to explore:

• Canonical, base urls that are descriptive such as: https://ncit.nci.nih.gov/ncitbrowser/
• Utilization of PERL for NCI canonical urls
• Developing urls that resolve to individual concepts in the NCIt (in addition to the landing page referenced above)
• … FDA & other subsets under development
• Provide NCI content via a FHIR server (possibly leveraging efforts underway for CCDH etc)
• Explore NCI / CCDH(?) use of STATO to explore a similar approach:  canonical url & HTA reference page

Please let me know what I may have missed or where I may have recorded this incorrectly. I am happy to assist in this process in any way I can – please do not hesitate to ask!

Best,

Davera Gabriel, RN

Senior Research Terminologist

Johns Hopkins University

Institute for Clinical and Translational Research

2024 E Monument St, Suite I-200

Baltimore, MD 21287

+1 (530) 723-8356  davera@jhu.edu

In the meeting this past Friday (12Mar21) Mr Fragoso explained that the NCI had deliberated HL7's request, but had some difficulty changing the url due to dependencies in legacy NCI systems dating back as much as 2 decades.  Therefore, they devised a solution they felt would fit both the HL7 request and their own operations.  They have implemented a redirect for calls to the url above (http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl) with a MIME type of html to land here (https://ncit.nci.nih.gov/ncitbrowser/)  Further, he demonstrated that via this mechanism a "slash vs hash" mechanism was available which permitted appending a forward slash(+ the NCIT code) in the url to drive to the NCIT entry for that code (e,g,: http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl/C1234)

One last detail to note is Mr Fragoso indicated they had recently updated their OID registry records for both the NCI-T & NCI-M

Reading the above my understanding is that:

• Correct is the use of <url value="http://ncicb.nci.nih.gov/xml/owl/EVS/Thesaurus.owl" /> for referencing the NCI-T (National Cancer Institute Thesaurus) as a FHIR CodeSystem.
• Erroneously, THO on both build.fhir.org/ig/HL7/UTG/CodeSystem-v3-nciThesaurus.html  and registry.fhir.org/results?query=%22nci%22&latestFilter=true still list `http://ncithesaurus-stage.nci.nih.gov` , plus variants seen such as `http://ncit.nci.nih.gov . 

Can this be clarified and resolved (ie. aligned), please? Thank you.