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The purpose of the Patient Empowerment WorkGroup will be to represent the viewpoint of patients and their care-givers as part of the standards process.

References on rationale for this workgroup can be found under References


Work Products and Contributions to HL7 Processes:

  • Ensure that (appropriate) impacts on patients (positive and negative) are a consideration of the standards development process and are appropriately documented in as part of all relevant HL7 standards.
  • Provide an entry-point and give support to patients, caregivers and their advocates with respect to both influencing and leveraging HL7 standards.
  • Provide patient centric guidelines for standards developers and implementers
    • Example: Patient-centric checklist for FHIR apps
  • Assist in the standards development process by providing patient subject matter expertise
  • Define, assist and/or coordinate standards and implementation guides related to interoperability with patient-facing systems. These are some example use cases:
    • Patient facing EHR and Payer Query APIs, patient corrections, patient consents, patient generated data (including health concerns, device data, notes, questionnaire responses), patient initiated scheduling requests.

  • Provide the patient voice to the interoperability security and privacy conversation.

Formal Relationships With Other HL7 Groups

This group anticipates collaboration with many HL7 groups and is available as a resource to all groups. 

Insert Formal Relationship information here when known. 


Phone: +1-603-459-5119
IM: SMS, Signal, Telegram, WhatsApp
Location: Boston area

IM: Twitter: @practicalHIT, Linkedin/virginialorenzi
Position: Senior Technical Architect
Department: NewYork-Presbyterian Hospital
Location: NY, NY

Position: President
Department: Hi3 Solutions
Location: Los Angeles

Call Info

Weekly Conference Call

Join us Thursdays at 1 Pm Eastern,

Dial-in number (US): (425) 436-6200
Access code: 635327#
International dial-in numbers:
Online meeting ID: patientempowerment
Join the online meeting:

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