Chair today:  Abigail Watson 

Scribe today:  Virginia Lorenzi 

Attendance has been moved to the bottom.  


Agenda Item


Opening & Admin

5 min

Welcome any newcomers 

  • Thank you for joining us!

  • Visit our NEWCOMERS page: Welcome Newcomers! It explains how to sign up to Confluence, our listserv, and the Zulip FHIR chat platform, and how our group works. 

  • We ask attendees to use their full names and include their company name (or N/A or advocate).  This will help avoid zoom bombers and help us with attendance and balanced voting.
Standing announce-mentsAntitrust Reminder

Professional Associations that bring together competing entities, such as HL7, are subject to strict scrutiny under applicable antitrust laws. HL7 recognizes that the antitrust laws were enacted to promote fairness in competition and, as such, supports laws against monopoly and restraints of trade and their enforcement. Each individual participating in HL7 activities, regardless of venue, is responsible for knowing the contents of and adhering to the HL7 Antitrust policy as stated in §05.01 of the Governance and Operations Manual (GOM). 

Ensure Zoom is recording

Note our WG's recording policy:

Patient Empowerment WG’s policy is to record many of its weekly calls and virtual working group sessions to help with minute taking.  If a recording will also be published, the participants will be asked in advance if that is OK.  

Zoom announces when recording is started.  Any participant can also ask the group or the co-chairs that we stop or pause recording in a specific meeting, and recording will be stopped or paused as requested.

Approval of Minutes

3/2 minutes will be approved next week, since the updated Mission and Charter was not posted there until 3/9 AM.  

(Our protocol: "The minutes have been posted on Confluence. Are there any corrections to the minutes? (pause) Hearing none, if there are no objections, the minutes are approved," )

5 minUpcoming Events

IHE Connectathon March 6-10

USCDI V4 Comments period is open - Corrections may have a proposal

WEDI Patient Experience Virtual Event, April 2023

About Us - Workgroup for Electronic Data Interchange (WEDI)

HIMSS 2023 is in April - asked who was going.  Maria will be moderating a panel of patient advocates including Grace Cordovano - Empowering Patients Through The Digital Front Door

1 minStatus on Patient Intro in R5Our Patient Intro is in the R5 draft:
5 minMission and Charter Updates

Reviewed slide deck last week -  need to further discuss Mission and Charter.  Ran out of time.

10 minADI Present Block Vote 6:

Brian presented the block vote in depth.  Will vote on it next week.

10 minMay Working Group Meeting Agenda

Agenda - Patient Empowerment WG for HL7 WGM, May 8 - 12, 2023

We have put in meeting room requests for May.

20 minProject Updates

ADI with FHIR (Wednesdays 12 ET)

see block vote above

SPHR FHIR IG (Fridays at 2Pm ET)

Abbie provided an update on changes to the draft spec including the addition of logical models for mapping Apple data to FHIR:

And a clean up for the signing and encryption page.  Bulk data is also referenced although the format for SPHR will be more heterogenious:

Virginia noted that the scope statement has not been approved - discussed working on getting it approved at the next meeting.   PSS-2125 - Getting issue details... STATUS

Patient Contributed Data  (meets 10AM ET Wednesdays).

Jan discussed how they are at the point in reviewing comments and editing where they really need to use Jira and do reconciliation and could use help.  Lloyd has said he will provide guidance.  Virginia asked if there is someone who could help.

Patient Request for Corrections calls (meets 4pm ET on Mondays)     

Virginia discussed the state of the ballot - all issues reviewed, both the ballot issues and the issues submitted by the Netherlands outside of the ballot and dispositions entered.  Many were editorial recommendations to improve the readability of the spec.  Some were add temrinology to THO type comments - we have decided to defer doing that for our STU1.  Most issues that represented changes of significance were discussed at length at the May and Sept WGMs.  One issue, FHIR-36935 - Getting issue details... STATUS "Based the Implementation Guide on Communication Increases Costs" represented a significant change.  It was discussed with a broad group of stakeholders for two calls and was disposed as non-persuasive with mod.  The mod was: 

Add a 'Known Issues' section to spec that says:

  • Some implementers believe that a more streamlined approach without communication should be considered for the next release.

Now the project team is focused on doing many edits to carry out the changes catalyzed by the ballot comments.

0 min - not on todays agendaCo-sponsored projects

International Patient Access (Wednesday 10AM ET) 

Problem Oriented Health Record (Monday 3pm ET) 

Personal Functioning and Engagement

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Attendance ( )

From Zoom's attendance data:

Name (Original Name)Present
Virginia Lorenzi (NYP)
Abigail Watson  (MITRE)
Dave deBronkart
Debi Willis (myPatientLinks)
Maria Moen (MyDirectives/ADVault, Inc.)
Britt Massei
Corey Spears 
Danielle Sill
Jan Oldenburg  
Jay Gauthier
Jessica Skopac (Mitre)
John Keyes
Lincoln Weed
Michael Mittelman
Natasha Kreisle
Rachel Richesson
Rita Torkzadeh (Aegis)
Ryan Harrison
Tina Wilkins (MITRE)
Lynda Hoeksema (MITRE)
Andrea Downing
Grace Cordovano
Matt Elrod (maxMD)
Dave Hill (Mitre)
Tamara Brantley
Stanley Nachimson
Tammy Hamrick
Kim Herman (Epic)
Nancy Lush

Bart Carlson
Mikael Rinnetmaki
Juhan Sonin
Karen Georges-Ransom (NYP) 
Patricia Falto (NYP)
Vicki Giatzikis (NYP)
Jeff Danford (altera digital health)
Marjorie Behm (LEAP for health)

Christopher Wean (Epic)

Shaumik Ashraf (Mitre)
Neelima Karipineni (MITRE)

Jason Kulatunga 
Joe Quinn (Smile Digital Health)
Brian Meshell (MITRE)