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Chair: Debi Willis Virginia Lorenzi

Scribe: Dave deBronkart

Attendees

Present

Name

Present

Virginia Lorenziy
Debi Willis
LLoyd McKenziey
Rachel Richessony

Mikael Rinnetmäki

y
Nancy Lush
Lisa Nelson
Dave deBronkarty
Jan Oldenburg
Marie Moen
Abigail Watsony
John Moehrke
John Keyesy
Terrie ReedTerrie Reedy
Jose Costa Teixeira
Bart Carlson

Meeting Info:

HL7 Patient Empowerment     https://global.gotomeeting.com/join/322275573 
United States: +1 (872) 240-3212,,,322-275-573 

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Agenda Outline

Agenda Item

Meeting Minutes from Discussion

Management

Welcome newcomers

none

Approval of this Agendaacclamation

Prior call Minutes approvalacclamation

co-chair nominations and electionsSend nominations to: Linda@HL7.org by June 15. 


Last call to promote the Patient Innovator Track at Virtual DevDays!

Announcement & info posts:


Any other news?
Management

Connectathon report-out and debrief 

Did our new WG learn or discover anything that alters our outlook? (Do we know or see anything now that we didn't know a week ago?)

This google doc contains WG member feedback. It's still open for additional comments. 

Conversation during the call:

Terrie: wondered about whether Public Health is a place for patient empowerment per se.

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From Lloyd, in Zulip follow-up: (bulleting, formatting and phrase-breaking added by Dave for emphasis & clarity of purpose)

  • One of our mandates is to help patients & care-givers navigate the HL7 standards development world to engage with the piece of standards development they care most passionately about - even if that piece isn't necessarily something that's directly patient facing (e.g. device or drug approvals, public health reporting, insurer-to-insurer communications, etc).
  • Our second mandate is to specifically provide advice to (and sometimes lead) the development of standards // where aspects of them are patient/care-giver facing.

Overall, what we're trying to do with the standards development process is

  • maximize the set of diverse viewpoints that provide feedback during the development process...
  • ....to maximize the suitability, longevity, adoption and value that the resulting standard has.

Injecting the patient/caregiver perspective across the spectrum of the HL7 organization helps us do that.

(Dave: that certainly says yes, Public Health is a place for the patient WG to participate and be heard)

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Virginia: On Friday you could lurk effectively - could arrive unannounced, leave anytime without disruption. Useful way to hear the players / get to know them. 

Abbie prefers in-person over virtual. Not as easy virtually to get to know people, but still got work done.

Observation: connectathons (virtual or F2F) seem to be quite different experiences for coders and non-coders. 


From May 14

Debi had expressed concern from hearing in a CARIN meeting that patient apps need licenses to be able to use code sets such as CPT. 

5/21 update: CPT is the only one of those that requires fees.


From April 16

Which WG's should we be connecting with?

Let's invite John to present CPCB and Lisa to present Care Coordination

(Virginia: Please confirm that our mission & charter are approved)




 Adjournment

1:50 ET

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