Short Description

Test the HL7 IG describing the representation of the ICHOM patient-centered outcomes measurement set for breast cancer.

Long Description

Testing the IG for both the creators and consumers, accurately representing the data that needs to be created as well as receiving it.

In particular, we will focus on testing both the clinical content and PROMs content from 5 categories as defined in the breast cancer set:

  • Demographic factors
  • Baseline clinical factors
  • Baseline tumor factors
  • Treatment variables
  • Disutility of care
  • Survival and Disease control


Test an Implementation Guide

Track Lead(s)

Vadim Peretokin, Greg Robinson

Track Lead Email(s),

Specification Information


ICHOM Breast Cancer was part of the Questionnaire track during Connectathon 30; links to track kick off can be found here.

Call for participants

Electronic Health Record system for breast cancer treatment implementing ICHOM's measure set (EHR)
Health Information System for breast cancer treatment implementing ICHOM's measure set (HIS)
Questionnaire Form Filler
Forms Repository Server (SDC Form Manager)
Health Analytics System

Participant prerequisites

Participants need to have the knowledge of:

To prepare for the connectathon, participants should:

  • refresh their knowledge on the requirements above
  • implement questionnaires and clinical data points from the FHIR IG and be ready to exchange measures data
  • come with a development environment that is ready to work in hotel wifi (ie no firewalling issues)

Zulip stream

Track Kick off Call

September 7, 2022, 09:00 ET / 15:00 pm CET 

Google Meet joining info
Video call link:
Or dial: ‪(AT) +43 1 22781000‬ PIN: ‪899 161 951 6601‬#
More phone numbers:

While the track kickoff recording is not available, you can find the slides for it here.

Virtual Sessions

September 17, 2022, 09:30 to 12:00 ET / 14:30 to 17:00 BST / 15:30 to 18:00 CET / 16:30 to 19:00 EET
Join Zoom Meeting

September 18, 2022, 09:30 to 12:00 ET / 14:30 to 17:00 BST / 15:30 to 18:00 CET / 16:30 to 19:00 EET
Join Zoom Meeting

Clinical Input Required?Clinical input on the mapping to FHIR is welcome
Related Tracks?Questionnaire

Testing Scenario:

Role 1 - SDC Form Receiver

A server that will receive a FHIR QuestionnaireResponse that has been submitted by a user, and subsequently validated.

Role 2 - Form Renderer  (SDC Form Filler)

A user interface for displaying a Questionnaire/Questionnaire response, permitting a user to complete the form and submit the answers.

Role 3 - EHR/HIS for breast cancer treatment

A system to provide breast cancer treatment data implementing ICHOM's measure set on a FHIR endpoint.

Role 4 - analytics system

A system to consume breast cancer clinical treatment data and analyze it.

Scenario 1 - send completed ICHOM Breast Cancer Questionnaires to an open FHIR endpoint

Allow the user to fill out ICHOM Breast Cancer Questionnaires and send the completed QuestionnaireResponse resources to a specific endpoint.

Scenario 2 - receive completed ICHOM Breast Cancer Questionnaires and visualize them

Receive completed QuestionnaireResponses and visualise them.

Scenario 3 - expose breast cancer clinical data in a format conforming to profiles in IG

Allow clients to extract information from an open FHIR endpoint in IG-compatible format.

Scenario 4 - receive, analyse, and render breast cancer clinical data

Consume, analyse, and present breast cancer clinical data for benchmarking purposes.