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Submitting WG/Project/Implementer Group

  • Patient Care WG
  • Healthcare Services Platform Consortium (HSPC)

Track Orientation

A webinar will be hosted on date at time to share further participation information about this track.

This track will use R4 version of FHIR.

Justification and Objectives

This track continues a successful series of connectathons since January 2017 with steady growth of interest in applying evidence-based clinical practice guidelines at the point of care to create and share individualized patient care plans.  Care Planning is a clinical process, not a single artifact, that requires integration of FHIR resources for patient care (CarePlan, CareTeam, Goal, Condition, and others) with the definition of computable clinical guidelines and protocols (PlanDefinition, ActivityDefinition) guided by clinical decision support using CQL. This track will be coordinated with the Chronic Conditions track at Clinicians on FHIR where they focus on clinical interoperability and harmonizing differences between the technical and clinical perspectives of FHIR resources.

This event will focus on updating our prior work to FHIR R4 and developing an implementation guide for Clinical Practice Guidelines on FHIR that includes support for evidence-based care planning. We will coordinate analysis and testing with a new HL7 project that was approved by Clinical Decision Support and Patient Care workgroups, titled "Representation of Clinical Practice Guideline Recommendations in FHIR". This new HL7 project intends to produce a FHIR IG for ballot in September 2019 and is based on collaborative work initiated by CDC, Adapting Clinical Guidelines for the Digital Age. This Care Planning connectathon track will explore and recommend FHIR IG project scope to include evidence-based care planning.

In addition to advancing the maturity of FHIR resources for evidence-based care planning, this track invites participation by clinicians and implementers who are interested in using these FHIR standards to realize the benefits of comprehensive shared care management coordinated across provider organizations. Two technical scenarios are included that engage the practitioner community to evaluate and demonstrate use of FHIR care management resources for the active management of a patient's healthcare.

Related tracks

  • Clinical Decision Support
  • Subscriptions

Previous Care Planning Connectathons

Proposed Track Lead

Dave Carlson,

Expected participants

Our track filled 3 tables at the January 2019 connectathon.

  • Allscripts
  • Clinical Cloud Solutions
  • DXC
  • Elsevier
  • InterSystems
  • Motive Medical Intelligence
  • ONC eLTSS Project
  • Perspecta
  • Veterans Health Administration (VHA)
  • Your organization here!

Clinical Scenarios

This track emphasizes a realistically complex care situation where our track participants are progressively creating and organizing a comprehensive suite of test materials that are based on clinical requirements. This scenario illustrates the flow of care plan creation and management with supporting clinical practice guidelines between a patient, his or her primary care provider, consulted specialists, home health care, telehealth care, and family caregivers involved in management of care for one or more health conditions.

Chronic Kidney Disease Care Management

Our track's clinical use case is based on the NIH Chronic Kidney Disease (CKD) Care Plan project. Because frequent transitions of care are common among patients with CKD, an electronic CKD care plan could potentially improve patient outcomes by helping to ensure that critical patient data are consistently available to both the patient and his/her providers. It is also very common for patients with CKD to require care planning for comorbidities; our example patient is also diagnosed with hypertension, diabetes and congestive heart failure.

  • Persona descriptions for patients with CKD and their provider care team members are available from the NIH site:
  • A draft set of data elements and terminology codes are also available for CKD care management, created by the NIH CKD Care Plan Working Group
  • Example FHIR resource data were created for testing, based on these CKD patient and provider personas and data elements

Test FHIR Servers

Technical Scenarios

Create a new care plan from protocol definition

  • Generate a CarePlan from a PlanDefinition protocol, customized using the current Patient's context
    • Use PlanDefinition $apply operation
    • Save the resulting CarePlan resource on a FHIR server, making it available to participants of the other track roles and scenarios

Retrieve a patient's care plan(s) and clinical data

Search for a patient's care plans(s) and associated resources (Conditions, Goals, activity references, CareTeam)

  • A client application enables patients and/or care team members to search for and view care plans and their referenced resources.
  • Or, an integration server searches a patient's records for care plans and other clinical data resources
    • e.g. a population health or analytics product vendor retrieves a patient's care plans and related resources for aggregation, analysis, and sharing with other care team members

System Roles

Clinical Practice Guideline Provider

Share standards-based, computable care protocol definitions, including:

  • Clinical practice guidelines, e.g. for new diabetes diagnosis, or managing the progression of chronic kidney disease
  • Order set definitions that recommend modification of activities in existing care plans, e.g. modify medications based on vital sign or lab observation feedback using CDS integration

A FHIR server (version R4) should support the following resources for care plan creation and care management

Care Plan Creator

  • Provide a SMART on FHIR app or other service that:
    • Supports clinician to select and apply recommended care protocol, as PlanDefinition, to a specific patient's new diagnosis.
    • Creates new CarePlan resource or modifies an existing CarePlan resource based on selected PlanDefinition and patient's current clinical data.

Care Plan Consumer

  • Provide SMART on FHIR app that:
    • Supports clinicians and/or patients to review the selected patient's current care plan(s) and associated clinical data.

Clinical Data Provider

A FHIR server (version R4) should support the following resources for care planning:

  • CarePlan, Condition, Goal, and other resources referenced by CarePlan.activity.reference
  • Patient data needed for management and decision support, including: Observation (labs and vitals), MedicationRequest, etc.

A FHIR server is available for testing with sample data that represent one or more care plan scenarios.

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