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CodeX (the Common Oncology Data Elements eXtensions) is an HL7 FHIR Accelerator project building a community to accelerate interoperable data modeling and applications based on a common, standard language for cancer data - mCODE, the minimal Common Oncology Data Elements, with supplemental Implementation Guides for particular use cases.  Adoption of mCODE-based standards for cancer data collection and sharing will enable semantic interoperability between stakeholders and usher in step-change improvements in cancer care and research benefiting all cancer patients. 

Please contact Steve Bratt or Kim Ball to discuss membership in this ground-breaking initiative.

Background

Only 3% of adult cancer patients participate in clinical trials that gather high-quality data for cancer research.

What if we could learn from the experiences of all 100% of cancer patients?

There are many barriers to collecting and sharing valuable patient data, including the inconsistent use or absence of data standards and the difficulty of transforming how we receive, access, and share patient information in a complex and non-interoperable healthcare system. Every interaction between a clinician and a cancer patient has the potential to provide data that could be used to improve care for that particular patient, as well as for all who follow.

CodeX is a growing, multi-stakeholder community, working together to enable high-quality, computable data for cancer care and research. CodeX is one of the early members of  the HL7 Fast Healthcare Interoperability Resources (FHIR) Accelerator programLeveraging mCODE™ FHIR Implementation Guide standard, the CodeX community is expanding around the mCODE core to enable collection of cancer patient data once and reusing the data for multiple, high-priority Use Cases .

Objectives

CodeX is assembling patients, providers and health systems, researchers, regulators, payers, electronic health record vendors and information technology innovators to:

  • Revolutionize cancer patient data collection, data sharing, and care by developing high-quality FHIR Implementation Guides, Reference Implementations, and pilots that demonstrate value
  • Leverage the capabilities of mCODE, adding the additional data elements needed for new use cases
  • Exchange data through electronic health record (EHR) and other systems in an interoperable way
  • Streamline data collection to unburden workflows, while protecting patient privacy

How CodeX Works...

Current Use Cases

CodeX Use Cases projects are Executing, or in the Planning or Discovery phases, with Members driving progress. Projects - ranging from collection of patient data for real-world-data clinical trials, matching patients with trials and registry reporting - demonstrate the potential to  improve cancer care and research through via mCODE, necessary supplemental data elements and new workflows. 

Information on all Use Cases can be found here.

Governance

The Steering Committee, representing key stakeholders, prioritizes CodeX activities, approves use cases and projects, monitors progress, reports status to the CodeX Members and decides which products should go to HL7 for formal standardization.

The Operating Committee, with one representative from each CodeX Member, proposes use cases, project plans and deliverables, artifacts for standards development, and handles funding requests considered by the Steering Committee. The Operating Committee also facilitates staffing of projects with in-kind personnel from Members and others in the community.


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