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Summit 2019 was a Great Success!

On behalf of the Program Committee*, many thanks to all who participated in the first Cancer Data Summit on October 2 and 3 in McLean, Virginia. During this highly-interactive event, leaders from throughout the oncology ecosystem developed the roadmap for adoption of a common language for cancer data – the minimal Common Data Oncology Elements (mCODE™) standard.

Patients, providers, payers, researchers, regulators, and vendors collaborated to explore the challenges and opportunities along the path toward ubiquitous use of mCODE for data collection and sharing, leading to step-change improvements in cancer care and research.

The event ended with recommendations for actions that we can take now, including actively engaging within the new CodeX HL7 FHIR Accelerator and mCODE Council. These recommendations and more are included in the Cancer Data Summit Summary, linked from the right side of this page along with other resources from the event.

We hope these materials inspire everyone to redouble efforts toward a common language for cancer data, with outstanding achievements to be shared at Summit 2020.

If you have any questions, please contact Steve Bratt at sbratt@mitre.org or Greg Shemancik at gshemancik@mitre.org.

Cancer Data Summit Summary – What We Discovered

Cancer Data Summit Agenda

Cancer Data Summit Slides - Day 1

Cancer Data Summit Slides - Day 2

Cancer Data Summit 2019 Photos

mCODE FHIR Implementation Guide

CodeX Home Page


* Cancer Data Summit Program Committee
John Halamka, Harvard Medical School, Beth Israel Deaconess Medical Center; Björn Albrecht, McKinsey Cancer Center; Danielle Ciofani, Broad Institute; Carole Flamm, Blue Cross Blue Shield Association; Sean Khozin, Federal Drug Administration; Robert Miller, American Society of Clinical Oncology; Steven Piantadosi, Brigham & Women’s Hospital; Keri Reardon, Alliance for Clinical Trials in Oncology; Jay Schnitzer, MITRE; Micky Tripathi, Massachusetts eHealth Collaborative; Margaret Van Meter, Intermountain Healthcare; Debi Willis, PatientLink Enterprises

Illustrations

Below are links to the wonderful artwork our illustrators made to represent and summarize the ideas and conclusions made at the Summit. These include the large summary from Day 1 (which is also seen above) as well as the individual illustrations for each of the 4 main topics discussed during Day 2: (1) Changing Clinical Culture, (2) Convergence on a Single Standard, (3) Privacy, Security, Ethics, and (4) Vendor Implementation.

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