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August 7th, 2020 


12:30pm - 1:15pm ET


ACS CAN → Kelly Durden, Devon Adams

MITRE → Caroline Potteiger, Salim Semy, Rob Dingwell, Jenn Holmes, Zach Lister 

Cancer Insights → Tarun Kumar, Sharon Alford → 

TrialScope →

Action items

Discussion notes in blueDecisions in greenAction items in red.

Planned Agenda Topics

  • <Hold for hot topics from project team>
  • Engagement Update
    • UCSF → Elly meeting with Adam and Leslie August 17th. 
    • UTSW → Caroline and Salim meeting with UTSW next week. 
    • Other updates? 
    • Also meeting with TrialJectory and Massive Bio next week. 
    • Kelly will have an update on the Grady Health System next week. 
  • Phase 0 update
    • In progress. 
    • When changes are made the mCODE filters, Mike has to refresh the server. 
  • Confluence
  • Phase 1 Planning (continued) - hold off until next week due to people missing and more time to create specific tasks. 
    • 1A Protocol and Pilot Process  
      • Draft study protocol and IRB submission 
      • Process of de-identification 
      • Plan out recruitment of patients 
        • Create a 1-pager targeted towards patients?  
        • Are patients needed for this phase? Or just data?  
          • If it's just data, all we need is access.  
          • Option 1 - Cancer Insights patients can get their data and share it with us.
            • Would need a waiver of consent from the IRB to share this data. Must be de-identified. 
            • Problem is that patients are giving us data, but we're not really giving much back. 
          • Option 2 - find sources of existing data. 
            • may have data we can use.  
            • Ciitizen - could be a source of data. Mark has spoken to them.
              • MITRE has also had discussions with Anil Sethi when this project was just beginning. We could revisit this. 
          • Option 3 - find volunteers willing to share data.
            • ACS CAN has a lot of volunteers who would most likely be willing to share data.
            • However, to use ACS CAN's name, there would be many internal hoops to jump through, which would take a lot of time.  
      • Plan out onboarding of patients - where we left off on (8/31) 
      • Generate mCODE records for these patients
    • PCT Technical Readiness for 1A
      • ?
    • Cancer Insights Integration
      • Map Cancer Insights data model to generate mCODE
      • Address gaps using FHIR Questionnaire 
      • Create an agnostic interface
      • Integration with PCT component 
    • Standards Documentation 
      • Adjust documentation to be more trial matching service agnostic and patient portal agnostic
      • Develop a FHIR Implementation Guide for mCODE-enabling matching services
    • mCODE-enable Matching Services Suggestion: We may roll it into PCT Technical Readiness for 1A
      • Create sandbox
      • Map matching service to mCODE 
  • Did Epic identify any characteristics a health system should have for us to partner with them? 
    • Epic didn't feel comfortable sending a list of health systems, but they could provide feedback on the health systems we're talking to. Caroline sent a list this week of these health systems. 
    • After next week, we'll know more about Grady and could potentially add them to the list. 
  • Atrium Health update?  
    • Mark followed up. Will connect on this next week. 
    • Need to close the loop. 
  • Add everyone to the CT Barrier group? 
    • Kelly to add Tarun, Sharon, and Zach. 

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