2022 September CIC WGM Minutes - Q3

Keith W. Boone

David Pyke 

Project with ACC, CRISP as an ONC LEAP Grant

Operating as the FHIR Interop experts.

Update existing registry work for an IG - Women's Health Registry

Submission to ACC registries -

• Cardiac Cath (CathPCI)
• Chest Pain - MI

Chief challenge - accessing distributed patient data for inclusion in registry.

Could get data through CareEquality-CommonWell or from Epic API.

CREDS profile says: every registry has a data model, FHIR Structure Definition can be used to describe the data model of a registry.

Can map to a different data model in CREDS - with map to FHIR USCDI, CDA templates, V2

Implementer can get data in C-CDA format - therefore input can come from multiple formats and multiple sources (FHIR, V2, CDA). Then go through and find elements matching data with FHIRpath 

David Pyke points out that data isn't really accessible - lots of question/answer - yes, no.

Are they on a new medication? requires review of all medication records and interpretation.

ACC has a problem. They cannot ingest FHIR (except the patient resource). There data model is built around human judgements. 5% of questions cannot be queried.

CPT being closed is a challenge.

• Propose thinking differently - what data do we need to collect to populate the registry in order to make inferences?
• Materials are in the IG referenced above.
• Milestones: Connectathon in January 2023, (test extraction and bundling)
• James Tcheng will present information to ACC next month. IG nearing completion.

ONC (Grantee) requires results go through Ballot