Page tree
Skip to end of metadata
Go to start of metadata



CARIN Virtual Connectathon November 18-19, 2020

CARIN  will host a two-day Connectathon focusing on advancing the CARIN Consumer Directed Payer Data Exchange (CARIN IG for Blue Button®) Implementation Guide.

Purpose: To hands-on test the CARIN Consumer Directed Payer Data Exchange (CARIN IG for Blue Button®) Implementation Guide, learn more about the IG, and ask the IG developers questions.

Primary Audience: Technical and non-technical teams who are working to implement the IG.

Location: Zoom link to follow.

Date: The Connectathon will begin on November 18th and run from 11:00am – 6:00pm ET and on November 19th from 10:00am ET – 3:00 am ET.

Please sign up for the Connectathon by November 13th here:

A dedicated Zulip channel for the Connectathon can be found here:

Track Info Session Recording

We will hold an information session on November 11th. The slide deck can and a recording of the session will be posted here.

CARIN / CMS Connectathon December 9-10, Baltimore, MD

CARIN and CMS will host a two-day Connectathon focusing on advancing the Consumer Directed Payer Data Exchange (CARIN IG for Blue Button®) work using FHIR R4, CARIN Real-time Pharmacy Benefit Check project, CMS Blue Button 2.0, CMS Beneficiary Claims Data API, and CMS Data at the Point of Care work.

Location: New Wave located at 3200 Lord Baltimore Drive Windsor Mill, MD 21244.

The Connectathon will begin on December 9th and run from 9:00am – 6:00pm ET and on December 10th from 9:00am ET – 11:00 am ET.

Connectathon information and tracks can be found here.

The CARIN Community meeting will begin on December 10th and run from 12:00pm – 3pm ET. Please reach out to Mark Roberts ( for additional details on the logistics for these meetings.

Please sign up for the Connectathon by December 6th here:

Space is limited so if you do not sign up you may not be able to participate. If we run out of space, we will limit participation to those who have signed-up. Please elect one of the tracks listed in the sign-up sheet and note what entity type you will be participating as.

July 30, 2019 Washington, D.C.

The CARIN Alliance is excited to announce the private sector released the Consumer Directed Payer Data Exchange (CARIN IG for Blue Button®) data model and draft implementation guide as part of the White House Blue Button® 2.0 Developers Conference. The Consumer Directed Payer Data Exchange (Consumer Directed Payer Data Exchange (CARIN IG for Blue Button®) draft implementation guide includes more than 240 claim data elements that have been agreed on by multiple regional and national health plans. These data elements are included in what we are calling the common payer consumer data set or CPCDS. We have taken these data elements and mapped them to HL7® FHIR® resources to better assist health plans implement the CMS Interoperability and Patient Access proposed rule. Read the full announcement here.


The CARIN Alliance

The CARIN Alliance is a non-partisan, multi-sector alliance co-founded by David Blumenthal, David Brailer, Aneesh Chopra, and Mike Leavitt. The Alliance is led by distinguished risk-bearing providers, payers, consumers, pharmaceutical companies, consumer platform companies, health IT companies, and consumer-advocates who are working collaboratively with other stakeholders in government to overcome barriers in advancing consumer-directed exchange across the U.S.

Our Vision

Our vision is to rapidly advance the ability for consumers and their authorized caregivers to easily get, use, and share their digital health information when, where, and how they want to achieve their goals. Specifically, we are promoting the ability for consumers and their authorized caregivers to gain digital access to their health information via non-proprietary application programming interfaces or APIs. We envision a future where any consumer can choose any application to retrieve both their complete health record and their complete coverage information from any provider or plan in the country.

What is Consumer-Directed Exchange?

Consumer-directed exchange occurs when a consumer or an authorized caregiver invokes their HIPAA Individual Right of Access (45 CFR § 164.524) and requests their digital health information from a HIPAA covered entity (CE) via an application or other third-party data steward.


Health Plan Project

Consumer-facing Real-time Pharmacy Benefit Check Project

Join the CARIN Alliance

To learn more about CARIN, or explore opportunities to participate in our activities, please contact us or visit our website.

Key Contacts

Board Members and Participants

Project Contacts






Ryan HowellsPrincipalLeavitt Partners

Program Manager
Dave LeeDirectorLeavitt Partners

Policy, Real-time Pharmacy Benefit Check, Trust Framework projects
Mark RobertsAssociateLeavitt Partners

Contracting, Membership, Mailing Lists, Meeting Invites, Quarterly Meetings, Health Plan and Policy projects
Lauren WardManagerLeavitt Partners

Digital Identity and Trust Framework projects
Pooja BabbrahSenior ConsultantPoint of Care Partners

Lead for the CARIN Consumer-facing real-time pharmacy benefit check implementation guide
Amol Vyas
Chief ArchitectCambia Health Solutions

Lead for the CARIN Blue Button implementation guide
  • No labels